In order to maximize the haemophilia community’s use of the HERO study, the two questionnaires used in the study are made available in public domain. The two questionnaires "Adult People with Haemophilia (PWH)" and "Parents of a Child below 18 years old with Haemophilia" are intended for self-completion (either pen and paper, or using fillable PDF). Whether you decide to use one or both questionnaires, a set of guidelines have been developed that provide information designed to ensure you get the best results possible for your research.
The objectives of making the questionnaires and guidelines available are to enable:
Download the guidelines and questionnaires here:
“Days and years have taught me how to cope with haemophilia and accept it as a positive challenge.”
Walid Kobisi, Egypt,
Walid has haemophilia A.