Knowledge

People with haemophilia and parents of children with haemophilia reported an overall satisfaction with the support and understanding shown by their partners, family, friends, other schoolchildren and teachers. And although the majority of school teachers are made aware of a child’s haemophilia, parents report that a lack of knowledge was the main source of dissatisfaction with those who care for their child.



Almost a third of people with haemophilia and 41% of parents of children with haemophilia report having a negative experience when telling someone about their or their son’s haemophilia.

See facts and figures (PDF)